Paul McNally, MD – Lead PI
Paul is a consultant in paediatric respiratory medicine and Director of Research and Innovation at Children’s Health Ireland. He is an associate Professor of Paediatrics at RCSI in Dublin . Paul’s main research interest is early CF lung disease and response to CF modulator therapies. Paul is lead investigator for the RECOVER study.
Jane Davies, MD – Co-PI
Jane is a Professor in Paediatric Respirology & Experimental Medicine at the National Heart and Lung Institute and an Honorary Consultant in Paediatric Respiratory Medicine at the Royal Brompton & Harefield NHS Foundation Trust. She co-leads the site at the European CF Society Clinical Trials Network and has personal research programmes in infection, lung physiology and imaging.
Áine Fleming – Project Manager
Áine is the RECOVER Project Manager who will play a key role in the planning, coordination and execution of the study, working alongside the Lead Investigator (Paul McNally), Co-PI, site PI’s, study management team and clinical research coordinators/research nurses to ensure all endpoints and timelines are met. Áine has previously worked as part of the CF research team at the National Children’s Research Centre at CHI, with extensive clinical trials, clinical research and pharmacovigilance experience.
Maurice Dowling – Sponsor Contact
Jenny Lennon, PhD – RECOVER Monitor
Jenny completed her PhD in Trinity College Dublin in 2014. Shortly after completion, she took up the role of Clinical Trials Coordinator in the Children’s Clinical Research Unit, working in the Department of Respiratory Medicine at Children’s Health Ireland at Crumlin. She manages a team of clinical research coordinators and works closely with the Principal Investigators and the CF multidisciplinary team at each site to ensure all trials are conducted in compliance with ICH/GCP regulations, the study protocol and the site SOPs. She will act as the monitor for the RECOVER study.
Sharon holds a first class honours Masters of Pharmacy degree at Royal College of Surgeons in Ireland and Bachelor of Science (Hons) in Pharmacology at University College Dublin. She is undertaking a PhD as part of the RECOVER study and is the lead on the Adherence subsection of the research. Sharon has worked as a Clinical Pharmacist in Children’s Health Ireland (CHI) at Crumlin Hospital since 2014.
Abaigeal Jackson, PhD – CFRI Representative
Abaigeal is the Head of Research and Operations at the CF Registry of Ireland (CFRI). She has a PhD in Public Health from the University of Glasgow and an undergraduate degree in Natural Sciences (Zoology) from Trinity College Dublin. Abaigeal chairs the Registry’s Scientific Research Committee and leads the Registry research programme. She is a member of the European CF Society Scientific Committee for Epidemiology, the European CF Patient Registry Steering Group and from 2015-2018, chaired the European Patient Registry Scientific Committee.
Carolyn Thornton – PPI Team
Carolyn has a degree in Biochemistry and Masters in Food Science. She teaches Science and Biology in St. David’s Holy Faith. Most importantly she is a Mother of a 16-year-old boy with Cystic Fibrosis.
Caroline Heffernan – PPI Team
Caroline started working for CF Ireland in September 2007 as Patient Advocate on the Member’s Services Team. In her role as advocate she supports members from diagnosis through teenage years and into adult life. In addition to member advocacy, Caroline organises the annual conference and is involved with fundraising and raising awareness by visiting schools, colleges and medical institutes informing the public and future medical staff about aspects of living with CF. Previously Caroline worked for over 20 years as a liaison tutor for children with learning difficulties.
Benat Broderick – PPI Team
Benat aged 16, is from Dublin, Ireland. He is a secondary school student who lives with Cystic Fibrosis. Benat is strongly involved in the CF community through all the work he does as an Ambassador for Cystic Fibrosis Ireland and has a keen interest in CF research.